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The baby post...

February 10, 2020

Today I’m 35 weeks and four days pregnant. It feels like yesterday when I discovered I was just 6 weeks this journey.

I guess it took me a while, a lonnnngggg while, to comprehend it. The fact that I was actually pregnant. Every woman goes through a myriad of emotions throughout her pregnancy, just as each has a unique experience of pregnancy itself.
When I told people, their response was usually the same - “you must be so excited!” “boy or girl?” and “You must be thrilled!” But honestly, I wasn’t sure how to feel for a long time . It was surreal. All I knew was that I couldn’t find the words to express how I felt.
When I finally acknowledged why I was experiencing these mixed emotions and why I wasn’t in a ‘Hollywood-style happiness bubble of baby’ - I realised I never believed I’d actually get pregnant. Or be blessed with the experience of carrying another life into the world.


During these congratulatory chats, I was tempted to say to people, yes I’m unbelievably happy somewhere deep down - overwhelming scared. Scared that this pregnancy will see me regressing to helpless, dependent patient-mode. I imagined constant bouts of illness, dreaded seizures putting the baby at risk (so far, one tonic-clonic seizure at around 20 weeks…devastating, but the bebe was absolutely fine), dangerous falls as my bump grew and returning to life in a wheelchair because my right-sided paralysis and lack of balance would become more apparent month by month. And I haven’t even started on the stroke fatigue, epilepsy medication side-effects or not-being-able-to-take-strong-painkillers for my chronic pain.
Yep, I know. What a positive mindset!

You might be thinking, wouldn’t she have thought about all these potentially before getting pregnant? Well, I’ll preface this next sentence with: I know an unbelievable amount of young women struggle with fertility these days, unfortunately it’s more common than not. One in 25 Australian babies are now born via IVF or one in every classroom (https://bit.ly/2uoH7jK).
So, when we got pregnant, within a few weeks, we realised how fortunate we were. I assumed that I’d be one of those statistics. I guess I’d secretly resigned myself to the fact that being able to carry a child, without massive complications, was unachievable. This belief, in part, was thanks to doctors back in the early days of my recovery who expressed doubt over the future possibility of me as ‘mother material’.

When, for so long, your body has been a source of grief, frustration, disappointment, pain and misery you never expect it to do the opposite - bring you such joy. So far, it’s been a relatively easy ride. Just the usual aches and pains, exhaustion and general discomfort. No morning sickness! Praise be.
Aside from medical professionals, your self-belief can wane when a few friends have also assumed I’d never consider becoming (or trying to) a mother. Innocently dropping casual remarks like “lucky you’ve got so many things in your life you love doing with Gareth, like travel. Not everyone has to have kids.”
I don’t blame people for these types of comments, it’s simply because they just don’t know and sometimes people think it’s safer to stick with their assumptions, rather than having an awkward conversation and asking the question. Trust me, asking questions and getting correct answers is always better.

I guess it all changed when the little baby bump started taking shape. The anxiety and fear have dissipated. Now it’s pure, joyful anticipation. I think when my obstetrician says the words “It’s a…!” (boy or girl) will be the most exciting moment of our lives. That, and when our little miracle is placed on my chest.

To be continued…

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Stroke Research Consumer Forum

November 11, 2018

The Stroke Research Consumer Forum - a platform that gives an opportunity for survivor’s voices to be heard and a chance to shape where future research is heading. Interested in the outcomes? On behalf the Florey Institute, I put together a report of the findings.

Click here to read

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WELLNESS IS A CHOICE

November 15, 2017

I wish I had the luxury of choosing a 'cheat day' or not. With a 'cheat day' or 'cheat meal' you feel guilty for about an hour after you've inhaled an entire pizza with a side of chocolate. Or to take it one step further, you feel extra guilty (and hungover) on Monday when you've had a 'cheat weekend' of endless wine and half a packet of cigarettes. But, like 'they say', tomorrow's another day. You have THE CHOICE to return to (or start) your 'healthy habits' lifestyle. Matcha, kale, chia, kefir, hemp, coconut everything, protein balls, raw anything, amaranth, acai bowls, longevity bowls, farro, kimchi, cauliflower and just about anything with turmeric in it. On top of this, exercise for at least 30 mins per day, practice mindfulness and write in your gratitude journal before bed. Make sure you budget for your overpriced superfoods and really overpriced activewear. 

For some women, this sounds heavenly, for other women - this sounds like pure hell. Regardless of which category you fall into - it's still a choice. By no means is this a 'pity post' or an 'I'm so incredibly bitter that I can't run along a crowded St Kilda sidewalk of a Saturday morning in my activewear only stopping to sip my alkaline water and touch up my makeup". To each their own. But, you have THE CHOICE to be fit, healthy, average, unfit, a slob or a bit of both. Lucky you, really. Because us girls fighting the tiresome, extremely frustrating battle that comes with a chronic illness - we don't have a choice. You have good days and bad days, but no days where the illness (visible or not) isn't there. Almost like ground-hog day where you wake up with the dreaded 'brain fog', take your necessary meds, eat, walk around zombie-like for an hour and finally be ready to start the day at around 10.00am. Some of us have to make appointments with physios simply to ask "If I start walking more (to the shops/beach/local neighbourhood) will it degenerate my legs and hips faster?" Rather than, "If I increase my cardio from 30 to 40 minutes, will I achieve the perfect beach body in time for summer?"

Source: wellness
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YOUNG STROKE SURVIVORS ON SBS

September 27, 2017

I returned from my amazing trip to India on Thursday. Life-changing, long-awaited, incredible, beautiful trip with beautiful people. So in my attempt to resume 'normal life' - I sat down to properly read the overwhelming response/support of the segment I appeared in on The Feed about stroke survivors. I still haven't watched it and probably won't, but the message is out there, which is the point. Starting conversation is key. 

If you feel inclined - watch the Youtube clip of it here.

Thanks to Maria, Daniel and Corrin from SBS - and all the other people in my life who went through the experience with me x

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EPILEPSY ISN'T A BAD WORD

September 26, 2017

As a result of my acquired brain injury, I also acquired epilepsy. Thanks universe! Anyway, it's a pretty shitty thing, but there's worse things in life. Click the link to read the piece I wrote for News.com.au: https://goo.gl/vtxRgL

Want to know more? Click here to educate yourself here: http://epilepsyfoundation.org.au/

 

 

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BRAIN INJURY AUSTRALIA & NSF

September 26, 2017

It's a privilege to be invited by Brain Injury Australia and the Stroke Foundation to sit on the panel with industry leaders, carers and other survivors at the Melbourne Brain Centre! On Monday 15th of August  we will be discussing the impacts of brain injury and ways to prevent this devastating disease. Please share this post with any interested parties. 

Please join us at:
Melbourne Brain Centre
The Florey Institute of Neuroscience and Mental Health 30 Royal Parade, Parkville VIC.

rsvp: admin@strokefoundation.com.au or phone (03) 9670 1000

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Becoming Disabled

September 26, 2017

A very thought-provoking article by Rosemarie Garland-Thomson. 

"...pride movements for people with disabilities — like Crip Power or Mad Pride — have not gained the same sort of traction in the American consciousness. Why? One answer is that we have a much clearer collective notion of what it means to be a woman or an African-American, gay or transgender person than we do of what it means to be disabled."

Click the link the read more: https://goo.gl/GANAJE

 

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ABC's The Drum

September 21, 2017

I wrote a little something for The Drum - check it out here: https://goo.gl/BSUkBR

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The baby post...
Stroke Research Consumer Forum
WELLNESS IS A CHOICE
YOUNG STROKE SURVIVORS ON SBS
EPILEPSY ISN'T A BAD WORD
BRAIN INJURY AUSTRALIA & NSF

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We miss you Dadda 💕 Only 3 weeks now! 🍣🤍 Meadow is so lucky to have wonderful men in her life, like Uncle John Eric 💕 This face 💕 For all those asking how Meadow’s first flight was ✈️
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#sleepyhead #meadowarteliza #firstflight #qld #vic #traveller Meadow’s Grandad and Nanuk (Nanna) leave tomorrow, returning to their home in the UK. They’ve been here since the day Meadow was born, 3 months ago, under usual circumstances. COVID has brought many horrendous things for mankind, but some 💛🧡🤎🤍
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